Advocacy
Advocacy
Why Advocacy?
Why Advocacy
I have experienced years of gaslighting and trauma – being dismissed, ignored, and questioned by not only medical and academic professionals, but by family and friends. It has been a soul searching, eye opening experience, one I wish no parent ever has to walk through. I have made it my life mission to help educate, support, and empower women and families to use their voice to better advocate for themselves.
I’m a big believer that things happen for a reason, even when we can’t see it at first. Finding the silver lining through the most difficult times is the lesson that leads you forward. I’ve turned my life experience into a purpose, becoming a Board Certified Patient Advocate in 2022.
It’s so much more than being a voice for others. It’s inspiring others to have the courage to stand up and discover their own voice. To provide them with the skills and support they need to keep going and rediscover their power to transform their own lives is incredible.
"It makes everything I’ve gone through worthwhile, it’s something so much bigger than me. Giving back, advocating for, and empowering women and families to advocate for themselves has given me a purpose.
What made you decide to become an patient advocate?
I have experienced years of gaslighting and trauma – being dismissed, ignored, and questioned by not only medical and academic professionals, but by family and friends. It has been a soul searching, eye opening experience, one I wish no parent ever has to walk through. I have made it my life mission to help educate, support, and empower women and families to use their voice to better advocate for themselves.
I’m a big believer that things happen for a reason, even when we can’t see it at first. Finding the silver lining through the most difficult times is the lesson that leads you forward. I’ve turned my life experience into a purpose, becoming a Board Certified Patient Advocate in 2022.
It’s so much more than being a voice for others. It’s inspiring others to have the courage to stand up and discover their own voice. To provide them with the skills and support they need to keep going and rediscover their power to transform their own lives is incredible.
What made you decide to become an patient advocate?
"It makes everything I’ve gone through worthwhile, it’s something so much bigger than me. Giving back, advocating for, and empowering women and families to advocate for themselves has given me a purpose.
Chronic and rare diseases, disability discrimination, & policy change.
improving the diagnostic process, addressing medical trauma, & advocating against medical gaslighting.
My Current areas of focus are:
where the healthcare &
education system intertwined
family & women’s health
I’m a big believer that things happen for a reason, even when we can’t see it at first. Finding the lessons through the most difficult times in my life is what propelled me forward. I’ve turned my life experience into a purpose, finding a passion and drive for advocacy I never knew before.
To support my mission to create change within the healthcare system and have a greater impact on the lives of patients with rare/chronic diagnoses, I became a Board Certified Patient Advocate in 2022.
To support my mission to create change within the healthcare system and have a greater impact on the lives of patients with rare/chronic diagnoses, I became a Board Certified Patient Advocate in 2022.
Chronic and rare diseases, disability discrimination, & policy change.
improving the diagnostic process, addressing medical trauma, & advocating against medical gaslighting.
My Current areas of focus are:
where the healthcare and education system intertwined
family & women’s health
Your Voice, Your Story, Your Experience
MATTERS!
YOU.
I feel unheard, Ignored, and dismissed when interacting with healthcare professionals.
I'm barely surviving & overwhelmed with getting the proper care for Myself and My child?
AREN't.
ALONE.
My child continues to experience Discrimination by our school district duE to A Chronic medical diagnosis?
connect with me
WE'LL work together
Let's do it!
to provide You with the knowledge and self advocacy skills to make informed decisions about Your healtH & actively manage Your chronic Illness With Courage & Confidence.
Your Voice, Your Story, Your Experience
MATTERS!
