I’m a Board Certified Patient Advocate & Empowerment Mentor. As a Rare Medical Mom & Chronic Illness Warrior myself...
I’m on a mission to Create Change
& help women & families lead
an unexpected path with
Courage & Confidence.
Hello there,
I'm Nicole.
I live in Upstate New York with my husband, 4 children, 2 uniquely crazy adopted cats and insanely smart dog.
It all began while I navigated through more than a decade of medical trauma and gaslighting as a chronic illness patient myself.
Fighting to be seen, heard, valued as the key member of not just my healthcare team, but two of my children with rare & chronic diagnoses as well. As a medical mom I found very little help and support for someone like me navigating an unexpected path exhausted and living in a constant state of fight or flight.
Patients and caregivers are often questioned harshly but never given resources or support to help manage life with a chronic condition. After years of experiencing trauma I was determine to fight back. That is where my journey in advocacy began.
I’m a big believer that things happen for a reason, even when we can’t see it at first. Finding the lessons through the most difficult times in my life is what propelled me forward. I’ve turned my life experience into a purpose, finding a passion and drive for advocacy I never knew before.
To support my mission to create change within the healthcare system and have a greater impact on the lives of patients with rare/chronic diagnoses, I became a Board Certified Patient Advocate in 2022.
Chronic and rare diseases,
disability discrimination, policy change
& developing A Parent/staff collaborative approach.
improving the diagnostic process, addressing
medical trauma, advocating against medical gaslighting,
& cultivating A patient/Provider Centered collAboration.
My Current areas of focus are...
where the healthcare & education system intertwined,
family & women’s health,
Advocacy
My
Story
is worth
sharing.
Read More
Tell Me More
It all began while I navigated through more than a decade of medical trauma and gaslighting as a chronic illness patient myself.
Fighting to be seen, heard, valued as the key member of not just my healthcare team, but two of my children with rare & chronic diagnoses as well. As a medical mom I found very little help and support for someone like me navigating an unexpected path exhausted and living in a constant state of fight or flight.
Patients and caregivers are often questioned harshly but never given resources or support to help manage life with a chronic condition. After years of experiences trauma I was determine to fight back.
I’m a big believer that things happen for a reason, even when we can’t see it at first. Finding the lessons through the most difficult times in my life is what propelled me forward. I’ve turned my life experience into a purpose, finding a passion and drive for advocacy I never knew before.
To support my mission to create change within the healthcare system and have a greater impact on the lives of patients with rare/chronic diagnoses, I became a Board Certified Patient Advocate in 2022.
Chronic and rare diseases, disability discrimination, & policy change.
improving the diagnostic process, addressing medical trauma, & advocating against medical gaslighting.
My Current areas of focus are...
where the healthcare and education system intertwined,
family & women’s health,
Advocacy
TELL ME MORE
Through my experience I have found knowledge is power. However, your progress is compromised if you don’t have the skills to use that power to your advantage. Self empowerment is key. Believing in yourself and standing in your power. Knowing who you are, knowing your value, knowing you have the power within yourself to create change is life changing. It gives you the courage and confidence to persevere. To overcome obstacles, break down barriers, and advocate successfully. Self empowerment is my jam and something I’M KNOWN to talk about often.
Tell ME More
Empowerment
Through my experience I have found knowledge is power. However, your progress is compromised if you don’t have the skills to use that power to your advantage. Self empowerment is key. Believing in yourself and standing in your power. Knowing who you are, knowing your value, knowing you have the power within yourself to create change is life changing. It gives you the courage and confidence to persevere. To overcome obstacles, break down barriers, and advocate successfully. Self empowerment is my jam and something I’M KNOWN to talk about often.
Tell Me More
Empowerment
The Gifts of
Imperfection
favorite Book
Get to know me
Dark Chocolate &
Hallmark Movies
Guilty Pleasure
Empowerment T-shirts
& Home Decor
latest obsession
I love to dance. I was captain of my High School dance team. You can still find me dancing around the house while my teens roll their eyes.
Fun FAct
Canva Graphic Design
& Baking
Favorite Hobbies
T-shirt
& Jeans
Go to Outfit
"I have come so far. If I can help someone feel less alone, understood, seen, and heard. To learn to believe in and value who they are. I will have accomplished what I was put on this earth to do.
I can’t imagine doing anything else.”
YOU.
I feel unheard, Ignored, and dismissed when interacting with healthcare professionals.
I'm barely surviving & overwhelmed with getting the proper care for Myself and My child?
AREN't.
ALONE.
My child continues to experience Discrimination by our school district duE to A Chronic medical diagnosis?
DO YOU FEEL LIKE YOU ARE JUST BARELY SURVIVING AND OVERWHELMED WITH GETTING THE PROPER CARE FOR YOURSELF OR YOUR CHILD?
DO YOU FEEL UNHEARD, IGNORED, OR DISMISSED WHEN INTERACTING WITH HEALTHCARE PROFESSIONALS?
HAS YOUR CHILD EXPERIENCED DISCRIMINATION IN THE EDUCATION SYSTEM DUE TO A CHRONIC MEDICAL DIAGNOSIS?
Connect With Me
connect with me
WE'LL work together
Let's do it!
to provide You with the knowledge and self advocacy skills to make informed decisions about Your healtH & actively manage Your chronic Illness With Courage & Confidence.
connect with me
WE'LL work together
Let's do it!
to provide You with the knowledge and self advocacy skills to make informed decisions about Your healtH & actively manage Your chronic Illness With Courage & Confidence.
