When You Know
SomEthing Isn't Right

Part I I - The Escalation

Weeks later, I would understand
it was so much more than that.

Featured Series 01

Early in the year, his illnesses got worse, and his absences increased. I consistently communicated with the nurse, providing reasons, notes, and updates on any changes.

Both documented diagnoses were still active. Each year, a letter was provided confirming his diagnoses and treatments, along with their impact on his education.

After his illnesses increased, we met with his medical team, determined his current treatment was no longer working, and his specialist made changes. That documentation was provided to the district.

The absentee letters came anyway.
Principal emails were sent.

All communication regarding my son's attendance, medical documentation, and educational needs has always been with me. I have been the parent who attends the meetings, exchanges emails, takes phone calls, provides documentation, and responds to concerns. Yet when these formal letters began arriving, they were addressed only to my husband.

I requested a phone call with the principal, but it did not go well. Attendance concerns, the absentee letters, and his long-standing, well-documented diagnoses on his 504 plan were discussed. During that conversation, the principal dismissed the information I provided and showed no interest in resolving my concerns. Instead, he made a point of informing me that he was a mandated reporter and that it was his responsibility to communicate concerns if nothing changed.

At the time, it felt like a threat. Weeks later, I would understand it was more than that.

Additional emails were exchanged. More medical notes were provided. Detailed attendance corrections were sent more than once, including the morning of Halloween.

Nothing was enough.

On Halloween, while my son and his friends were playing outside our home, a county liaison appeared at my door. He introduced himself, showed me his badge, and confirmed which child was my son. He explained that he was there to help facilitate communication and that he was one step before CPS became involved.

I gave him everything I had.

I went inside and grabbed my binder of documentation. For nearly an hour, he stood in my garage while I reviewed the information I had already provided to the district. Medical documentation. Attendance records. Communication. Notes.

He seemed confused about why he had been sent to my home at all. It was clear that I was willing to work with them and I had already given more than enough documentation.

When he left, he provided me with a letter explaining why he had been sent. It was about vaccinations. When I called for clarification, he apologized and told me he had given me the wrong letter.

He later met with the school. When he called me back, he explained that building administration wanted to speak with my son's medical team. I told him it was unnecessary. I simply asked what else they could possibly be looking for.

That same day, without my consent, the school nurse called my son's medical team in Boston.

She reported concerns about the number of days he had missed school.
She told them he had never been sent to the nurse while sick.
She stated this was not her area of expertise but suggested Münchausen syndrome.

I still remember hearing our pediatrician say over the phone, "This isn't good."  He received the call from our Boston Specialist.  My heart sank. I felt like I couldn't breathe.  

A 12 year old child, who was diagnosed with multiple diagnoses at two years old. Those same diagnoses were documented in district records when he entered preschool at four. 
Multidisciplinary evaluations and reports had already been provided for eight years.  Educational supports were already in place. Even after the transition from an IEP to a 504 plan, his medical diagnoses remained documented, their educational impact already recognized, and accommodations remained in place to support each, including missed instruction related to his medical needs.

How could this be happening?

After that moment, the reality I was navigating was entirely different.  A whole new layer of difficult that is still hard to put into words.  

At first, the medical team that had once worked alongside us would not speak with me.
I was thankful our pediatrician was willing to meet with me the next day. He did verbalize, he knew it was not true but due to the serious nature, it needed to be discussed in detail rather quickly.  He did step in briefly and helped clarify what had happened. He did bring up an alarming concern and questioned, "Why did the school never communicate with him, the physician who saw him often, who knew my son best.

Over time, Boston stepped back from school communication. But trust, once disrupted, does not always return to its original shape.  

And in the end, I was left alone to clear my own name.

There is a particular kind of loneliness that comes when you know something is wrong and the people around you either cannot see it or cannot afford to acknowledge it.











Trust, once disrupted, does not always return to its original shape.

NEXT

Previous

PART III

Proving Reality

Documentation doesn't always provide resolution.

Before Everything Changed

PART I

We were looking at the same information and reaching very different conclusions.

NEXT

Previous

PART III

Proving Reality

We were looking at the same information and reaching very different conclusions.

Before Everything Changed

PART I

Documentation doesn't always provide resolution.

Before Everything Changed

Proving Reality