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We all have our own strengths, challenges, and ins

We all have our own strengths, challenges, and insecurities. Let’s not put out each other’s flames, rather fuel the fire within us all to pursue our own passions. Build each other, not tear each other down. Find inspiration in one another, not envy nor jealousy.

I am stronger, inspired, and more empowered everyday because of all the successful women I have been lucky enough to connect with in.

To the amazing ladies apart of my life - words can’t expression the gratitude I have for you. You have supported and encouraged me through the peaks and the valleys. You have allowed me to open up, to show my most vulnerable self, and loved me anyway.

I admire your strength, vulnerability, wisdom, and integrity. Your love and respect is absolutely priceless. You have reminded me of my worthiness and I will forever be grateful!

Here’s to being comfortable in your own skin.
To self reflection & accountability.
To owning your truth
and sharing your story.
To choosing kindness,
respect, empathy,
and leading with love.
To loving ourselves enough
and embracing vulnerability.
To failing and getting back up.
To growing.
To supporting each other, cheering each other on, and celebrating all of our success along the way. ❤️

Happy #internationalwomensday
#gracefullyfierce #womenempoweringwomen #inspire #leadwithlove

Today is Rare Disease Day! Why is that important

Today is Rare Disease Day!

Why is that important – because awareness is everything.

Patients with a rare diagnosis often get overlooked and even when diagnosed they often have limited treatment options.

They require more care, more open-minded doctors, and more research is needed to improve their quality of life.

• 300 million people living with a rare disease worldwide
• Over 6000 different rare diseases exist
• 72% of rare diseases are genetic
• 70% of those genetic rare diseases start in childhood

Most people wouldn’t look at my son and believe we’ve lived through quite a challenging life. I often focus on the good, on what we can do, and how we can adjust to keep moving forward. But the dark days have been heavy. It’s been a very long mentally challenging journey of difficult days, searching for answers, and fighting a very isolating lonely battle.

Seeing life through a different lens can give others a different perspective, cultivate empathy, and create awareness that brings about change.

Mason, now 11 years old, has fought to be seen, heard, and his life has been at risk since the day he was born. Having not one rare diagnosis but three, several other diagnoses, and developmental delays. To most he looks “normal.” This is the face of a boy who has

• Laryngeal Cleft
• Primary Immunodeficiency
• Primary Ciliary Dyskinesia

Our journey has brought me to my knees, tested me in ways I never could’ve imagined but is has given me so much. A new perspective on life. A new purpose. To advocate for those who don’t have a voice, to create awareness, and encourage those who can, to use their voice to create positive change for themselves and MANY more.

Mason is sensitive, STRONG, full of smiles, yet fights every single day to defy the odds and be the best he can be. I couldn’t be more PROUD to be his mom.

Rare is MANY.
Rare is STRONG.
Rare is PROUD.

#RareDiseaseDay2022 #rarediseaseday #rare #primaryimmunodeficiency #laryngealcleft #primaryciliarydyskinesia #medicalmom #advocate

Wishing the biggest Happy 13th Birthday to this yo

Wishing the biggest Happy 13th Birthday to this young man. He is the sweetest kid, with the biggest heart, incredibly easy going, and always willing to help.
Watching a young boy who was once painfully shy now coming out of his shell with more confidence has been incredible to watch. Jake has been through and learned more about life in 13 years than most do in a lifetime. He is brave, honest, hard working, compassionate, and incredibly loyal. His smile continues to light up a room and his goofiness will make anyone laugh. To say I’m proud of all he’s been through and the young man he’s becoming is an understatement. He’s one in a million and am lucky to be his mom.

Jakey - You bring so much love and light into this world. The world needs who you were made to be! There is so much more to learn and explore. I look forward to watching you continue to grow and move mountains every step of the way. Keep being you!!! Love you buddy! ❤️

Pre-Op is DONE! After 10 years of struggles and

Pre-Op is DONE!

After 10 years of struggles and trying so many things to get my body in a healthier state, it’s time. Changing my diet and taking a more natural functional approach towards my health has helped make some improvements over the last several years but it’s just not enough. Sometimes conventional medicine/surgical intervention is absolutely warranted.

I’ve resisted it. I’ve felt at times like I’d failed in some way. In this moment I know with all my heart I’ve done everything I can. Sometimes you just have lean in and let go of what you thought life was suppose to look like. Opening up your heart and mind, allowing space for better days to come.

I’m feeling so many emotions today. I’m beyond grateful I was able to carry 4 amazing babies and I truly loved every second of it. So many others who have struggle with similar medical issues have not been able to. My heart goes out to all of the women who have struggled with this decision.

It feels weird and a bit sad to let it all go but I know it’s time. I’m ready to take positive steps forward to a new season of healing and improving my overall wellness.

T-minus 7 days! ❤️

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#womenshealth #courageovercomfort #hysterectomy #hysterectomyawareness #adenomyosis #endometriosis #chronicillness #lupus #gracefullyfierce #getwellbeingyou

What a weekend. What a difference a day can make

What a weekend.

What a difference a day can make. What started out with fatigue and barely able to walk one time around the block, ended with a beautiful sunny day full of hope and more energy. Overwhelmed with gratitude receiving vaccine #2, for making it around the block twice, and having the energy to scream at the tv to Cuse getting an awesome win!

The boys: You do know you’re yelling buddy at a person who’s name really is buddy and really at a stationary object on the wall right?! I’m never watching a game with you again. You’re crazy!

Me: Yup, I got it. Just imagine me back in 2009 against UCONN with 6 nail biting overtimes!!!

It’s the simple yet impactful moments like these we will look back on and remember. Although we’ve had ups and downs and many days in between, I’m making the best of the extra time we have together.

Yes it’s true, we don’t know what tomorrow may bring. We never have and never will. Making the best of it - wherever you are, during whatever season you may be navigating through, matters most. ❤️

Your struggles are opportunities. To Learn. To

Your struggles are opportunities.

To Learn. To grow.

To share your knowledge and experience to create a positive impact on the life of someone else.

There is a greater purpose, if you just believe in your power.

One decision, one moment, one opportunity, one person sharing their story, can create an unimaginable ripple of healing and positive change.

Here’s to...

Growing.
Learning.
Showing Up.
Becoming part of the solution.
Making the world a better place.
Finding a purpose out of life’s most difficult struggles. ❤️

(Thank you @hopkinsmedicine for allowing me to be apart of such important work - research. Research that will provide answers and a better future for those with chronic autoimmune diseases.)
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